CHronic Nonbacterial Osteomyelitis International Registry

RecruitingOBSERVATIONAL
Enrollment

2,000

Participants

Timeline

Start Date

August 1, 2018

Primary Completion Date

August 31, 2028

Study Completion Date

August 31, 2050

Conditions
Chronic Nonbacterial OsteomyelitisChronic Recurrent Multifocal Osteomyelitis
Interventions
DRUG

Methotrexate

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Sulfasalazine

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Leflunomide

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Pamidronate

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Zoledronic acid

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Etanercept

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Adalimumab

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Certolizumab

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Infliximab

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

Golimumab

second-line treatment for children with CNO/CRMO after failure to respond to NSAIDs

DRUG

NSAID

first-line treatment

Trial Locations (1)

98105

RECRUITING

Seattle Children's Hospital, Seattle

All Listed Sponsors
collaborator

Boston Children's Hospital, Boston, MA, USA

OTHER

collaborator

Hospital for Special Surgery, New York

OTHER

collaborator

Joseph M Sanzari Children's Hospital, Hackensack University Medical Center, Hackensack, NJ, USA

UNKNOWN

collaborator

Riley Children's Hospital, Indianapolis, IN, USA

UNKNOWN

collaborator

University of North Carolina, Chapel Hill, NC, USA

UNKNOWN

collaborator

Royal Children's Hospital

OTHER

collaborator

Hacettepe University, Ankara, Turkey

UNKNOWN

collaborator

Bambino Gesù Children's Hospital, Rome, Italy

UNKNOWN

collaborator

University of British Columbia, Vancouver, BC, Canada

UNKNOWN

collaborator

Meyer Children's Hospital, Florence, Italy

UNKNOWN

collaborator

Mansoura University

OTHER

collaborator

University of Utah, Salt Lake City, UT, USA

UNKNOWN

collaborator

University of Iowa Carver College of Medicine, Iowa City, IA, USA

UNKNOWN

collaborator

Ann & Robert Lurie Children's Hospital of Chicago, Chicago, IL, USA

UNKNOWN

collaborator

Palacky University Olomouc Institute of Molecular and Translational Medicine, Olomouc, Czechia

UNKNOWN

collaborator

Alder Hey Children's NHS Foundation Trust Hospital, Liverpool, UK

UNKNOWN

collaborator

University of Calgary, Calgary, Alberta, Canada

UNKNOWN

lead

Seattle Children's Hospital

OTHER