Supportive Care Needs of Former Child, AYA Cancer Patients, and of Their Parents: Evaluation During Long-term Follow-up

CompletedOBSERVATIONAL
Enrollment

99

Participants

Timeline

Start Date

February 11, 2021

Primary Completion Date

January 18, 2023

Study Completion Date

February 15, 2023

Conditions
Solid Tumor or Lymphoma
Interventions
OTHER

Interview

The qualitative interview aims to identify the supportive care needs of patients and parents as well as their expectations with regard to a long-term follow-up.

OTHER

Self-report questionnaire

"To assess the quality of life, anxiety/depression of former patients and relatives:~For child and adolescent patients (less than 15 years old at inclusion):~* Pediatric Quality of Life Inventory Cancer module~* Screen for Child Anxiety Related Emotional Disorders Revised~* Children's Depression Inventory~For patients over 15 years of age at the time of inclusion and parents:~* 36-Item Short Form Health Survey~* Hospital Anxiety and Depression Scale~To describe and evaluate the offer and use of the network of health professionals who are aware of post-treatment issues: number of consultations, speciality and location of the professionals requested following the long-term follow-up consultation, time between referral and first consultation, evaluation of the geographical accessibility of care around the patient's home."

OTHER

Medical consultation

"To assess adherence to long-term follow-up medical consultation:~\- number of patients summoned/ number of consultations carried out ; reason for refusal of long-term follow-up medical consultation To assess medical complications through clinical data collection"

Trial Locations (1)

69373

Centre Léon Bérard - Institut d'Hémato-Oncologie Pediatrique, Lyon

All Listed Sponsors
collaborator

University of Paris 5 - Rene Descartes

OTHER

collaborator

Institut d'Hématologie et d'Oncologie Pédiatrique

UNKNOWN

lead

Centre Leon Berard

OTHER

NCT04711733 - Supportive Care Needs of Former Child, AYA Cancer Patients, and of Their Parents: Evaluation During Long-term Follow-up | Biotech Hunter | Biotech Hunter