99
Participants
Start Date
February 11, 2021
Primary Completion Date
January 18, 2023
Study Completion Date
February 15, 2023
Interview
The qualitative interview aims to identify the supportive care needs of patients and parents as well as their expectations with regard to a long-term follow-up.
Self-report questionnaire
"To assess the quality of life, anxiety/depression of former patients and relatives:~For child and adolescent patients (less than 15 years old at inclusion):~* Pediatric Quality of Life Inventory Cancer module~* Screen for Child Anxiety Related Emotional Disorders Revised~* Children's Depression Inventory~For patients over 15 years of age at the time of inclusion and parents:~* 36-Item Short Form Health Survey~* Hospital Anxiety and Depression Scale~To describe and evaluate the offer and use of the network of health professionals who are aware of post-treatment issues: number of consultations, speciality and location of the professionals requested following the long-term follow-up consultation, time between referral and first consultation, evaluation of the geographical accessibility of care around the patient's home."
Medical consultation
"To assess adherence to long-term follow-up medical consultation:~\- number of patients summoned/ number of consultations carried out ; reason for refusal of long-term follow-up medical consultation To assess medical complications through clinical data collection"
Centre Léon Bérard - Institut d'Hémato-Oncologie Pediatrique, Lyon
University of Paris 5 - Rene Descartes
OTHER
Institut d'Hématologie et d'Oncologie Pédiatrique
UNKNOWN
Centre Leon Berard
OTHER