Marfan Syndrome Moderate Exercise Pilot

NACompletedINTERVENTIONAL
Enrollment

23

Participants

Timeline

Start Date

November 9, 2020

Primary Completion Date

October 30, 2022

Study Completion Date

December 20, 2022

Conditions
Marfan Syndrome
Interventions
OTHER

Exercise Intervention Group

Patients will be educated on methods of self-evaluating exertion and cardiovascular effort by assessing respiratory rate and perceived exertion. Next, patients will be given options for cardiovascular activities and complete at a moderate level of activity for a minimum of 150 minutes per week. Patients will perform a combination of exercises under the supervision of a physical therapist until a mod intensity level is reached and sustained. Patients will be taught to use the activity tracker to record their heart rate, activity, and PES. Patients will have a phone call every week to assess status, answer questions, and provide guidance on progressing intensity or duration of exercise. At the end of 8 weeks all patients will return for re-assessment.

Trial Locations (1)

77030

Texas Children's Hospital, Houston

All Listed Sponsors
collaborator

The Marfan Foundation

OTHER

lead

Baylor College of Medicine

OTHER

NCT04641325 - Marfan Syndrome Moderate Exercise Pilot | Biotech Hunter | Biotech Hunter