NCT04569149View on ClinicalTrials.gov

Primordial Dwarfism Registry

RecruitingOBSERVATIONAL
Enrollment

200

Participants

Timeline

Start Date

March 11, 2008

Primary Completion Date

January 1, 2030

Study Completion Date

January 1, 2030

Conditions
MOPDIIMeier-Gorlin SyndromeSaul-Wilson SyndromeMicrocephalic Primordial DwarfismIMAGe SyndromeRNU4atac-opathy (e.g MOPDI, Lowry-Wood Syndrome, and Roifman Syndrome)LIG4 Syndrome
Trial Locations (1)

19803

RECRUITING

Nemours, Wilmington

All Listed Sponsors
collaborator

Potentials Foundation

UNKNOWN

collaborator

Walking with Giants Foundation

UNKNOWN

lead

Nemours Children's Clinic

OTHER