Engaging Adolescents in Decisions About Return of Genomic Research Results

NAActive, not recruitingINTERVENTIONAL
Enrollment

787

Participants

Timeline

Start Date

March 10, 2020

Primary Completion Date

November 30, 2026

Study Completion Date

November 30, 2026

Conditions
Genetic ScreeningAdolescentGenetic ChangeShared Decision MakingKnowledge, Attitudes, PracticeGenetic Testing
Interventions
GENETIC

Electronic Decision Tool

Adolescents and a parent, if applicable, will use an electronic decision tool to make categorical choices of types of diseases (treatable, preventable, adult-onset, and carrier status) they want to learn about the adolescent. Granular choices can be made within each category.

Trial Locations (2)

45229

Cincinnati Children's Hospital Medical Center, Cincinnati

55902

Michelle McGowan, Rochester

All Listed Sponsors
collaborator

University of Cincinnati

OTHER

lead

Children's Hospital Medical Center, Cincinnati

OTHER