NCT04454216View on ClinicalTrials.gov

GSD VI and GSD IX Natural History

RecruitingOBSERVATIONAL
Enrollment

400

Participants

Timeline

Start Date

September 18, 2020

Primary Completion Date

January 1, 2030

Study Completion Date

January 1, 2030

Conditions
Glycogen Storage Disease VIGLYCOGEN STORAGE DISEASE IXa1GLYCOGEN STORAGE DISEASE IXa2Glycogen Storage Disease IXBGlycogen Storage Disease IXCGSD 9 (All Subtypes)GSD 6
Interventions
OTHER

No intervention

This is an observational study that consists of data abstraction from patient medical records.

Trial Locations (1)

27710

RECRUITING

Duke University, Durham

Sponsors

Lead Sponsor

Duke University
All Listed Sponsors
lead

Duke University

OTHER