ATHN Transcends: A Natural History Study of Non-Neoplastic Hematologic Disorders

RecruitingOBSERVATIONAL
Enrollment

3,000

Participants

Timeline

Start Date

September 30, 2020

Primary Completion Date

June 30, 2035

Study Completion Date

December 31, 2035

Conditions
Hematologic DisorderBleeding DisorderConnective Tissue DisorderHemophiliaThrombosisVon Willebrand DiseasesThrombophiliaRare Bleeding DisorderPlatelet DisorderFactor IX DeficiencyFactor VIII DeficiencyThalassemiaSickle Cell Disease
Trial Locations (73)

10065

RECRUITING

Weill Cornell Medical College - New York Presbyterian Hospital, New York

10461

RECRUITING

Montefiore Medical Center, The Bronx

11040

RECRUITING

Northwell Health Hemostasis and Thrombosis Center at Long Island Jewish and Cohen Children's Medical Center, Hyde Park

14202

RECRUITING

Western New York BloodCare, Buffalo

14626

RECRUITING

American Thrombosis and Hemostasis Network, Rochester

15213

RECRUITING

Hemophilia Center of Western Pennsylvania, Pittsburgh

19104

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

RECRUITING

Penn Comprehensive Hemophilia and Thrombophilia Program/Hospital of the University of Pennsylvania, Philadelphia

19801

RECRUITING

Delaware Hemophilia Treatment Center, Wilmington

20007

RECRUITING

Georgetown University, Washington D.C.

20010

RECRUITING

Children's National Hemophilia Center, Washington D.C.

21287

RECRUITING

Johns Hopkins University Hemophilia Treatment Center, Baltimore

27157

RECRUITING

Wake Forest University Health Sciences, Winston-Salem

27517

RECRUITING

Comprehensive Hemophilia Treatment Center, University of North Carolina at Chapel Hill, Chapel Hill

27834

RECRUITING

East Carolina University Hemophilia Treatment Center, Greenville

28204

RECRUITING

St. Jude Affiliate Clinic at Novant Health Hemby Children's Hospital, Charlotte

30308

RECRUITING

Comprehensive Bleeding Disorders Center at Emory University and Children's Healthcare of Atlanta, Atlanta

30322

RECRUITING

Emory/Children's Health Care of Atlanta, Atlanta

31403

RECRUITING

Memorial Health University Medical Center, Savannah

32610

RECRUITING

University of Florida Hemophilia Treatment Center, Gainesville

32806

NOT_YET_RECRUITING

Arnold Palmer Hospital for Children - The Haley Center for Children's Cancer and Blood Disorders, Orlando

33136

RECRUITING

University of Miami Comprehensive Hemophilia Treatment Center, Miami

33607

RECRUITING

St. Joseph's Hospital Center for Bleeding & Clotting Disorders, Tampa

33701

RECRUITING

Johns Hopkins All Children's Hospital, St. Petersburg

37212

RECRUITING

Vanderbilt University Medical Center, Nashville

38105

RECRUITING

St. Jude Children's Research Hospital, Memphis

43205

RECRUITING

Nationwide Children's Hospital Columbus, Columbus

43606

RECRUITING

Northwest Ohio Hemophilia Treatment Center at the Toledo Hospital, Toledo

44106

RECRUITING

University Hospitals Health System Cleveland, Cleveland

44308

RECRUITING

Akron Children's Hospital - Showers Center for Cancer & Blood Disorders, Akron

45229

RECRUITING

Cincinnati Children's Hospital Medical Center, Hemophilia & Thrombosis Center, Cincinnati

45267

RECRUITING

University of Cincinnati Medical Center Hemophilia Treatment Center, Cincinnati

45404

RECRUITING

Dayton Children's Hemostasis and Thrombosis Center, Dayton

46260

RECRUITING

Indiana Hemophilia and Thrombosis Center, Indianapolis

48201

RECRUITING

Central Michigan Children's Hospital of Michigan, Detroit

48202

RECRUITING

Henry Ford Health System Bleeding and Thrombosis Treatment Center, Detroit

52242

RECRUITING

Iowa Hemophilia and Thrombosis Center, Iowa City

53226

RECRUITING

Comprehensive Center for Bleeding Disorders, Milwaukee

54311

RECRUITING

Hemophilia Outreach Center Green Bay, Green Bay

55905

RECRUITING

Mayo Comprehensive Hemophilia Center, Rochester

60612

RECRUITING

Rush University Medical Center, Chicago

61664

RECRUITING

Bleeding and Clotting Disorders Institute, Peoria

63104

RECRUITING

The John Bouhasin Center for Children with Bleeding Disorders, St Louis

64108

RECRUITING

Children's Mercy Hospital - Kansas City, Kansas City

70112

RECRUITING

Louisiana Center for Bleeding and Clotting Disorders, Tulane University, New Orleans

72202

RECRUITING

Arkansas Center for Bleeding Disorders, Little Rock

75235

RECRUITING

North Texas Hemophilia and Thrombosis Program - Pediatric Program / Center for Cancer & Blood Disorders, Dallas

75390

RECRUITING

North Texas Comprehensive Hemophilia Treatment Center, Dallas

76104

RECRUITING

Fort Worth Bleeding Disorders Program, Fort Worth

77030

RECRUITING

Gulf States Hemophilia and Thrombophilia Center, Houston

RECRUITING

Texas Children's Hemophilia & Thrombosis Center/Baylor College of Medicine, Houston

78229

RECRUITING

South Texas Comprehensive Hemophilia and Thrombophilia Treatment Center, San Antonio

78723

RECRUITING

Children's Blood and Cancer Center of Central Texas, Austin

80045

RECRUITING

University of Colorado Denver Hemophilia and Thrombosis Center, Aurora

85016

RECRUITING

Arizona Hemophilia and Thrombosis Treatment Center at Phoenix Children's Hospital, Phoenix

87131

RECRUITING

University of New Mexico Ted R. Montoya Hemophilia & Thrombosis Program, Albuquerque

89135

RECRUITING

Cure 4 The Kids Foundation, Las Vegas

89509

RECRUITING

Hemostasis and Thrombosis Center of Nevada, Reno

90007

RECRUITING

Orthopaedic Institute for Children HTC, Los Angeles

92121

RECRUITING

Hemophilia & Thrombosis Treatment Center at UC San Diego Health, San Diego

92123

RECRUITING

Rady Children's Hospital San Diego, San Diego

92408

RECRUITING

Loma Linda Hemoglobinopathy and Inherited Bleeding Disorder Program, San Bernardino

94143

RECRUITING

University of California, San Francisco Hemophilia & Thrombosis Center, San Francisco

94610

RECRUITING

UCSF Benioff Children's Hospital Oakland, Oakland

95817

RECRUITING

University of California at Davis Hemophilia Treatment Center, Sacramento

98101

RECRUITING

Washington Center for Bleeding Disorders, Seattle

90027-6016

RECRUITING

Childrens Hospital Los Angeles, Los Angeles

06106

RECRUITING

Connecticut Children's Medical Center, Hartford

06520

RECRUITING

Yale Hemophilia Treatment Center, New Haven

04074

RECRUITING

Maine Hemophilia and Thrombosis Center, Scarborough

02114

NOT_YET_RECRUITING

Massachusetts General Hospital Comprehensive Hemophilia and Thrombosis Treatment Center, Boston

07122

RECRUITING

Newark Beth Israel Medical Center - Hemophilia Center, Newark

02903

RECRUITING

Rhode Island Hospital Hemostasis and Thrombosis Center, Providence

All Listed Sponsors
collaborator

Pfizer

INDUSTRY

collaborator

Hemophilia of Georgia, Inc.

OTHER

collaborator

Genentech, Inc.

INDUSTRY

collaborator

Hemab Therapeutics

UNKNOWN

collaborator

CSL Behring

INDUSTRY

collaborator

Sanofi

INDUSTRY

collaborator

Novo Nordisk A/S

INDUSTRY

lead

American Thrombosis and Hemostasis Network

NETWORK