110
Participants
Start Date
December 8, 2020
Primary Completion Date
July 31, 2025
Study Completion Date
July 31, 2025
Novel Communication Intervention
The intervention is a series of 3 guided discussions (using visual aids) between the child's primary oncology physician/nurse team and the child's parent(s) with the purpose of improving parental comprehension of the options for goals of treatment, along with the benefits and burdens of each option.
Enhanced Usual Care Parent Education
The Enhanced Usual Care Parent Education is a series of 3 discussions between the child's primary oncology nurse and the child's parent(s) designed to control for time and attention. These discussions are focused on answering parents' questions and reviewing routine disease and treatment related information. Parents will receive a 1-hour face-to-face session every 3-4 months for a total of 3 sessions. At each session, parents choose 2-3 topics to review with the nurse.
Nemours Children's Health, Wilmington
Children's Healthcare of Atlanta, Atlanta
Riley Hospital for Children at IU Health, Indianapolis
Children's Hospital of Wisconsin, Milwaukee
Cardinal Glennon Children's Hospital, St Louis
MD Anderson Children's Cancer Center, Houston
Children's Hospital Colorado, Aurora
National Cancer Institute (NCI)
NIH
Indiana University
OTHER