Informational Meetings for Planning and Coordinating Treatment

NACompletedINTERVENTIONAL
Enrollment

110

Participants

Timeline

Start Date

December 8, 2020

Primary Completion Date

July 31, 2025

Study Completion Date

July 31, 2025

Conditions
End of LifeCommunicationCancer Metastatic
Interventions
OTHER

Novel Communication Intervention

The intervention is a series of 3 guided discussions (using visual aids) between the child's primary oncology physician/nurse team and the child's parent(s) with the purpose of improving parental comprehension of the options for goals of treatment, along with the benefits and burdens of each option.

OTHER

Enhanced Usual Care Parent Education

The Enhanced Usual Care Parent Education is a series of 3 discussions between the child's primary oncology nurse and the child's parent(s) designed to control for time and attention. These discussions are focused on answering parents' questions and reviewing routine disease and treatment related information. Parents will receive a 1-hour face-to-face session every 3-4 months for a total of 3 sessions. At each session, parents choose 2-3 topics to review with the nurse.

Trial Locations (7)

19803

Nemours Children's Health, Wilmington

30322

Children's Healthcare of Atlanta, Atlanta

46202

Riley Hospital for Children at IU Health, Indianapolis

53226

Children's Hospital of Wisconsin, Milwaukee

63104

Cardinal Glennon Children's Hospital, St Louis

77030

MD Anderson Children's Cancer Center, Houston

80045

Children's Hospital Colorado, Aurora

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

lead

Indiana University

OTHER

NCT04330833 - Informational Meetings for Planning and Coordinating Treatment | Biotech Hunter | Biotech Hunter