Quality of Life of Patients With Desmoid-type Fibromatosis

CompletedOBSERVATIONAL
Enrollment

156

Participants

Timeline

Start Date

August 6, 2020

Primary Completion Date

February 1, 2021

Study Completion Date

February 1, 2021

Conditions
Desmoid TumorDesmoid-type Fibromatosis
Interventions
OTHER

Questionnaires

\- Baseline questionnaire, version 1.0, October 29 2019, (Dutch) - Health care utilization, version 1.0, October 29 2019, (Dutch) - Decision-making, version 1.0, October 29 2019, (Dutch) - EORTC QLQ-C30, version 3.0, (Dutch) - DTF-QoL, version 1.0, October

Trial Locations (4)

1066 CX

3. Antoni van Leeuwenhoek Ziekenhuis (AVL) / The Netherlands Cancer Instituut , Amsterdam, The Netherlands, Amsterdam

6525 GA

Radboud University Medical Center (MC), Nijmegen, The Netherlands, Nijmegen

3015 GD

Erasmus MC Cancer Institute, Rotterdam

SW3 6JJ

Royal Marsden NHS Foundation Trust, London

Sponsors
All Listed Sponsors
collaborator

Radboud University Medical Center

OTHER

collaborator

The Netherlands Cancer Institute

OTHER

collaborator

Royal Marsden NHS Foundation Trust

OTHER

lead

Erasmus Medical Center

OTHER