210
Participants
Start Date
August 23, 2021
Primary Completion Date
May 31, 2024
Study Completion Date
May 31, 2024
SHAPE
The SHAPE intervention provides information for carers, and maintains the dignity and autonomy of the person with dementia, supporting them in planning for the future with their family. The person with dementia attends an online 10 week facilitator lead group based course. It is designed to develop self-management skills in areas including decision-making, symptom management and social interaction. It also provides information on the disease process and the development of healthy behaviors in a supportive learning environment to prevent problems that are common in the later stages of the disease. The adjunctive e-learning platform for carers provides the same information that the person with dementia receives plus additional material and signposting to support them in their role. This will empower the whole family to support and enable more effective self-management by the person with dementia, and enhance their ability to plan ahead together and make key decisions jointly.
Neuroscience Research Australia, University of New South Wales, Sydney
Centre for Age-related Medicine (SESAM), Stavanger University Hospital, Stavanger
Norwegian National Advisory Unit on Ageing and Health, Oslo
Cornwall Partnership NHS Foundation Trust, Bodmin
Devon Partnership NHS Trust, Exeter
The Research Council of Norway
OTHER
Alzheimer's Society
OTHER
National Health and Medical Research Council, Australia
OTHER
University of Exeter
OTHER
London School of Economics and Political Science
OTHER
The University of New South Wales
OTHER
The Hospital of Vestfold
OTHER
Helse Stavanger HF
OTHER_GOV