Observational Study to Assess the Quality of Life in Nephropathic Cystinosis Patients

Enrolling by invitationOBSERVATIONAL
Enrollment

31

Participants

Timeline

Start Date

July 31, 2020

Primary Completion Date

July 1, 2022

Study Completion Date

July 1, 2026

Conditions
Nephropathic Cystinosis
Interventions
DRUG

Cysteamine Bitartrate

ERT

Trial Locations (7)

Unknown

UZA, Antwerp

HUDERF, Brussels

UCL Saint-Luc, Brussels

UZ Gent, Ghent

UZ Leuven, Leuven

CHC, Liège

CHU, Liège

Sponsors

Lead Sponsor

All Listed Sponsors
lead

Chiesi SA/NV

OTHER

NCT04246060 - Observational Study to Assess the Quality of Life in Nephropathic Cystinosis Patients | Biotech Hunter | Biotech Hunter