Penn Biobank Return of Research Results Program

NACompletedINTERVENTIONAL
Enrollment

260

Participants

Timeline

Start Date

March 1, 2020

Primary Completion Date

April 11, 2023

Study Completion Date

August 1, 2023

Conditions
CancerCardiovascular DiseasesHereditary CancerHereditary Cardiac Amyloidosis
Interventions
BEHAVIORAL

e-Health (web-based) disclosure portal

Patient uses secure web-based portal to access genetic research results

BEHAVIORAL

Provider mediated disclosure

Patient has disclosure of genetic research result by a provider (genetic counselor)

Trial Locations (1)

19104

University of Pennsylvania, Philadelphia

All Listed Sponsors
collaborator

Fox Chase Cancer Center

OTHER

lead

Abramson Cancer Center at Penn Medicine

OTHER

NCT04242667 - Penn Biobank Return of Research Results Program | Biotech Hunter | Biotech Hunter