228
Participants
Start Date
April 15, 2022
Primary Completion Date
May 31, 2025
Study Completion Date
December 31, 2025
Adapted Family Gene Toolkit
Five web-based modules designed to increase knowledge of cancer genetics (Module 1); provide decisional support for genetic testing (Module 2); increase active coping to common challenges faced by HBOC families (Module 3); provide a five-steps, skills-building communication training (Module 4); increase knowledge about management of hereditary cancer risk based on the most updated recommendations from the National Comprehensive Cancer Network (Module 5).
Targeted intervention
The comparison website will provide targeted information about HBOC and enable sharing genetic test results.The Korean team will define the contents of the comparison website that will mimic the structure and function of a website already available in the US. The Korean team will create a translation process protocol, and share this guide for further translations from English into Korean and three Swiss national languages. The tailored and the targeted platform will be technically implemented in the same system, to track access and usage of the platform and provide a user-friendly experience.
RECRUITING
Unite d'Oncogenetique et de Prevention des Cancers, Geneva
NOT_YET_RECRUITING
Hirslanden Clinic Des Grangettes, Geneva
NOT_YET_RECRUITING
HFR Fribourg - Hôpital cantonal, Fribourg
RECRUITING
Hopital du Jura - Service d' Oncology, Delémont
RECRUITING
Universitatklinik fur Medizinische Onkologie, Inselspital, Bern
RECRUITING
University Hospital Basel, Basel
RECRUITING
Istituto Oncologico della Zvizzera Italiana, Bellinzona
NOT_YET_RECRUITING
Kantonalspital Winterthur, Winterthur
Yonsei University
OTHER
University Hospital, Basel, Switzerland
OTHER
Hopital du Jura, Delemont, Switzerland
UNKNOWN
Department of Computer Science Yonsei University, Seoul, Korea
UNKNOWN
National Cancer Center, Korea
OTHER_GOV
Chungnam National University
OTHER
Ente Ospedaliero Cantonale, Ticino, Switzerland
OTHER
Swiss National Science Foundation
OTHER
Insel Gruppe AG, University Hospital Bern
OTHER
University Hospital, Geneva
OTHER
Kantonal Hospital Winterthur, Medical Oncology
UNKNOWN
Kantonal Hospital Fribourg, Breast Center
UNKNOWN
Hirslanden, Grangettes, Geneva
UNKNOWN
Kantonal Hospital Solothurn, Olten
UNKNOWN
Kantonal Hospital Graubunden
UNKNOWN
Kantonal Hospital Wallis, Sion
UNKNOWN
Zurich Breast Center
UNKNOWN
University of Basel
OTHER