Audiovestibular Function in Infratentorial Superficial Siderosis

CompletedOBSERVATIONAL
Enrollment

11

Participants

Timeline

Start Date

February 7, 2020

Primary Completion Date

October 19, 2021

Study Completion Date

October 19, 2021

Conditions
SiderosisNeurological DisorderRare DiseasesAge Related Hearing LossPresbycusis
Interventions
DIAGNOSTIC_TEST

Hearing assessment

All study participants will undergo hearing tests, including hearing-specific questionnaires

DIAGNOSTIC_TEST

Vestibular/balance assessment

Siderosis group participants will undergo vestibular/balance tests, including gait assessment and balance-specific questionnaires

OTHER

Quality of life assessment

All study participants will be asked to complete a set of quality of life questionnaires

DIAGNOSTIC_TEST

Olfactory (smell) function testing

Siderosis group participants will undergo a formal smell identification testing by means of self-administered smell chart to identify the revealed scents

GENETIC

DNA bio-banking

Siderosis group participants will be asked to provide a saliva sample for DNA bio-banking

Trial Locations (2)

Unknown

UCL Ear Institute, London

University College London Hospitals NHS Foundation Trust, London

All Listed Sponsors
collaborator

NIHR UCLH Biomedical Research Centre (BRC)

UNKNOWN

collaborator

Bernice Bibby Research Trust

UNKNOWN

lead

University College, London

OTHER

NCT04200664 - Audiovestibular Function in Infratentorial Superficial Siderosis | Biotech Hunter | Biotech Hunter