NCT04150822View on ClinicalTrials.gov

CHORUS - Comprehensive HHT Outcomes Registry of the United States (Formerly OUR HHT Registry)

Active, not recruitingOBSERVATIONAL
Enrollment

296

Participants

Timeline

Start Date

November 1, 2018

Primary Completion Date

June 23, 2023

Study Completion Date

June 30, 2028

Conditions
Hereditary Hemorrhagic TelangiectasiaHHTArteriovenous Malformation of Brain
Interventions
OTHER

Registry and Saliva sample

Non-interventional registry with saliva sample collected for DNA analysis

Trial Locations (1)

M5B1W8

St. Michael's Hospital, Toronto

All Listed Sponsors
collaborator

Cure HHT

OTHER

collaborator

Dartmouth College

OTHER

lead

Unity Health Toronto

OTHER

NCT04150822 - CHORUS - Comprehensive HHT Outcomes Registry of the United States (Formerly OUR HHT Registry) | Biotech Hunter | Biotech Hunter