86
Participants
Start Date
March 1, 2021
Primary Completion Date
January 1, 2026
Study Completion Date
January 1, 2026
Family-informed intervention
Multiple face-to-face visits, telephone calls and-person visits with the PAP psychologist and team
Standard Clinical Care
Support which is given as part of the standard clinical care for patients who are currently prescribed PAP.
RECRUITING
The Children's Hospital of Philadelphia, Philadelphia
RECRUITING
University of Miami, Miami
RECRUITING
Cincinnati Children's Hospital Medical Center, Cincinnati
National Institutes of Health (NIH)
NIH
National Heart, Lung, and Blood Institute (NHLBI)
NIH
Children's Hospital Medical Center, Cincinnati
OTHER
University of Pennsylvania
OTHER
University of Miami
OTHER