Investigating the Experience of Living With Down Syndrome and Obstructive Sleep Apnea Syndrome (Stage 1)

NACompletedINTERVENTIONAL
Enrollment

42

Participants

Timeline

Start Date

August 2, 2019

Primary Completion Date

January 1, 2022

Study Completion Date

August 1, 2022

Conditions
Down SyndromeObstructive Sleep Apnea
Interventions
BEHAVIORAL

Open-ended semi-structured interviews

Semi-structured interviews will explore such key constructs as knowledge/belief about OSAS and PAP therapy, routines and resources that promote or limit PAP use, barriers, self-efficacy, and communication and attitudes about PAP. The interviews will be performed with the parent and that they will be audio-recorded.

Trial Locations (1)

19104

The Children's Hospital of Philadelphia, Philadelphia

All Listed Sponsors
collaborator

National Institutes of Health (NIH)

NIH

collaborator

National Heart, Lung, and Blood Institute (NHLBI)

NIH

collaborator

University of Pennsylvania

OTHER

collaborator

Children's Hospital Medical Center, Cincinnati

OTHER

lead

Children's Hospital of Philadelphia

OTHER

NCT04124471 - Investigating the Experience of Living With Down Syndrome and Obstructive Sleep Apnea Syndrome (Stage 1) | Biotech Hunter | Biotech Hunter