38
Participants
Start Date
February 14, 2020
Primary Completion Date
March 24, 2022
Study Completion Date
March 23, 2023
SPIRIT-Dementia
"The interventionist will begin the SPIRIT-dementia session by assessing the patient's and surrogate's cognitive, emotional, and spiritual/religious representations of the patient's illness, prognosis, and end-of-life care. Individualized information will be provided about the effectiveness of life-sustaining treatment for people with end-organ failure, and the patient will examine their values about life-sustaining treatment at the end of life. The interventionist will help the surrogate prepare for end-of-life decision-making and for the emotional burden of decision-making. A Goals-of-Care document will be completed at the end of the session. The delivery of SPIRIT-dementia incorporates enhanced consent techniques, such as reducing information load by proceeding in manageable segments, offering repetition of material, opportunity for rehearsal, and using targeted questioning to verify adequate comprehension prior to eliciting preferences for goals of care."
Usual Care
As required by Centers for Medicare and Medicaid Services (CMS) written information on advance directives is provided to a patient on the first day of dialysis, and a social worker reviews this information with patients and encourages them to complete an advance directive.
Emory Dialysis at North Decatur, Decatur
Emory Dialysis at Candler, Decatur
Emory Dialysis at Northside, Atlanta
Emory Dialysis at Greenbriar, Atlanta
National Institute of Nursing Research (NINR)
NIH
National Institute on Aging (NIA)
NIH
Emory University
OTHER