37
Participants
Start Date
September 1, 2019
Primary Completion Date
December 31, 2023
Study Completion Date
December 31, 2023
Nurse-led transition intervention and access to the iHeartChange website
"Elements of the transition interventions include: (i) introduction to transition and its importance, (ii) creation of a MyHealth Passport, (iii) review diagram of participant's cardiac anatomy, (iv) discussion of 3 potential future cardiac complications (v) iHeartChange website (vi) discussion of the concept of self-management (vii) discussion and promotion of communication skills by the adolescent with their healthcare team via the GLADD technique (Give, Listen, Ask, Decide, Do) (viii) a 3-sentence summary about their CHD (ix) ongoing text/email support from RN"
Stollery Children's Hospital, Edmonton
University of Alberta
OTHER