NCT04001595View on ClinicalTrials.gov

Global FKRP Registry

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

November 30, 2013

Primary Completion Date

December 31, 2025

Study Completion Date

December 31, 2025

Conditions
LGMD2ILGMDR9Limb Girdle Muscular DystrophyCongenital Muscular DystrophyMuscle-Eye-Brain DiseaseWalker-Warburg SyndromeFKRP Gene Mutation
Interventions
OTHER

Patient Registry

Participants who have volunteered to participate will complete various questionnaires relating to their condition.

Trial Locations (1)

NE1 3BZ

RECRUITING

John Walton Muscular Dystrophy Research Centre, Newcastle University, Newcastle upon Tyne

All Listed Sponsors
collaborator

LGMD2i Research Fund

UNKNOWN

collaborator

CureLGMD2i

UNKNOWN

collaborator

Ludwig-Maximilians - University of Munich

OTHER

lead

Newcastle University

OTHER