The United Kingdom Facioscapulohumeral Muscular Dystrophy Patient Registry

RecruitingOBSERVATIONAL
Enrollment

1,018

Participants

Timeline

Start Date

May 31, 2013

Primary Completion Date

January 31, 2040

Study Completion Date

January 31, 2040

Conditions
Facioscapulohumeral Muscular Dystrophy
Interventions
OTHER

Patient Registry

Participants who have volunteered to participate will complete various questionnaires relating to their condition.

Trial Locations (1)

NE1 3BZ

RECRUITING

John Walton Muscular Dystrophy Research Centre, Newcastle upon Tyne

All Listed Sponsors
lead

Newcastle University

OTHER