Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

RecruitingOBSERVATIONAL
Enrollment

250

Participants

Timeline

Start Date

June 14, 2019

Primary Completion Date

June 30, 2026

Study Completion Date

June 30, 2026

Conditions
Supportive Care Needs of Caregivers
Interventions
BEHAVIORAL

online surveys

Survey data about supportive care needs, mood, and the experience of IC's finding meaning and purpose in the caregiving experience.

Trial Locations (1)

10065

RECRUITING

Memorial Sloan Kettering Cancer Center, New York

All Listed Sponsors
lead

Memorial Sloan Kettering Cancer Center

OTHER