The SPIN - Scleroderma Support Group Leader EDucation Program Trial (SPIN-SSLED)

NACompletedINTERVENTIONAL
Enrollment

148

Participants

Timeline

Start Date

September 23, 2019

Primary Completion Date

July 13, 2021

Study Completion Date

July 13, 2021

Conditions
Scleroderma, Systemic
Interventions
OTHER

SPIN-SSLED Program

"The SPIN-SSLED Program is a 3-month-long (13 sessions) group training program designed to be delivered via videoconferencing to provide information and skills to improve leader support group leaders' confidence and self-efficacy to carry out their leadership roles and reduce the burden on them of leading a support group. Each session is about 90 minutes long and covers one of the 13 modules of the program.~Module topics includes: (1) The Leader's Role; (2) Starting a Support Group; (3) Structuring a Support Group Meeting; (4) Scleroderma 101; (5) Successful Support Group Culture; (6) Managing Support Group Dynamics; (7) Loss and Grief: The support group leader; (8) Loss and Grief in Scleroderma: Supporting group members; (9) Advertising and Recruitment for the Support Group; (10) The Continuity of the Group; (11) Supporting Yourself as a Leader; (12) Remote Support Groups; and (13) Transitions in Support Groups."

Trial Locations (1)

H3S 1Y9

Jewish General Hospital, Montreal

All Listed Sponsors
lead

Lady Davis Institute

OTHER

NCT03965780 - The SPIN - Scleroderma Support Group Leader EDucation Program Trial (SPIN-SSLED) | Biotech Hunter | Biotech Hunter