45
Participants
Start Date
June 23, 2020
Primary Completion Date
June 23, 2030
Study Completion Date
June 23, 2030
Clinical examination and patients' questionnaires regarding activity and participation (preliminary Immunogloblin M (IgM)-Rasch-built overall Disability Scale (RODS), and finalized IgM-RODS)
Rasch-built overall Disability Scale (RODS) is a disease-specific, patient-based, linearly weighted scale that captures activity and social participation limitations to detect activity limitations in patients with Immunogloblin M (IgM) anti-myelin-associated-glycoprotein peripheral neuropathy. For this study, the preliminary RODS is a 146 item patient-reported outcome instrument that assesses activity and social participation limitation. Rasch Measurement Methods examine the extent observed data (patients' actual responses to scale items) accord with predictions of those responses from a mathematical model.
RECRUITING
Hospices Civils de Lyon Service Neurologie C, Pathologies Neuromusculaires, Unité 302, Bron
RECRUITING
Centre de référence NNERf, Le Kremlin-Bicêtre
Hospices Civils de Lyon
OTHER