14
Participants
Start Date
February 7, 2017
Primary Completion Date
December 15, 2017
Study Completion Date
December 15, 2017
'Uptime' participation
The intervention are designed for each individual and are consistent with the model for participation-based interventions. The interventions are goal-oriented (meaningful and family/client-selected goals), family/client-centered (promoted self-determination and decision making), collaborative (partnership between caregivers), strength-based (built on participant and caregiver strengths) and ecological (natural environment and real-life experiences). Design of the intervention comprised three steps: 1) Preparation period (6 weeks); 2) Intervention period (12 weeks); 3) Follow-up period (12 weeks)
Center for Rett syndrome, Department of Paediatrics and Adolescents Medicine, Copenhagen
Rigshospitalet, Denmark
OTHER