'Uptime' Participation Intervention in Girls and Women With Rett Syndrome

NACompletedINTERVENTIONAL
Enrollment

14

Participants

Timeline

Start Date

February 7, 2017

Primary Completion Date

December 15, 2017

Study Completion Date

December 15, 2017

Conditions
Rett Syndrome
Interventions
OTHER

'Uptime' participation

The intervention are designed for each individual and are consistent with the model for participation-based interventions. The interventions are goal-oriented (meaningful and family/client-selected goals), family/client-centered (promoted self-determination and decision making), collaborative (partnership between caregivers), strength-based (built on participant and caregiver strengths) and ecological (natural environment and real-life experiences). Design of the intervention comprised three steps: 1) Preparation period (6 weeks); 2) Intervention period (12 weeks); 3) Follow-up period (12 weeks)

Trial Locations (1)

2100

Center for Rett syndrome, Department of Paediatrics and Adolescents Medicine, Copenhagen

All Listed Sponsors
lead

Rigshospitalet, Denmark

OTHER

NCT03848442 - 'Uptime' Participation Intervention in Girls and Women With Rett Syndrome | Biotech Hunter | Biotech Hunter