NCT03749980View on ClinicalTrials.gov

MyVHL: Patient Natural History Study

RecruitingOBSERVATIONAL
Enrollment

10,000

Participants

Timeline

Start Date

January 31, 2012

Primary Completion Date

December 31, 2028

Study Completion Date

December 31, 2028

Conditions
Von Hippel-Lindau DiseaseHereditary Leiomyomatosis and Renal Cell CancerBirt-Hogg-Dube SyndromeSDHB Gene Mutation
Trial Locations (1)

02132

RECRUITING

VHL Alliance, Boston

All Listed Sponsors
collaborator

National Organization for Rare Disorders

OTHER

lead

Joshua Mann, MPH

OTHER