Acceptability of Palliative Care in Parkinson Disease Care

NACompletedINTERVENTIONAL
Enrollment

20

Participants

Timeline

Start Date

November 16, 2018

Primary Completion Date

June 1, 2019

Study Completion Date

June 2, 2019

Conditions
Parkinson Disease
Interventions
BEHAVIORAL

Palliative Care referral

Individuals with Parkinson disease identified as having specific uncontrolled symptoms or critical events will undergo standardized referral to palliative care, who will provide supportive care. During the palliative care referral, participants and their care partners may discuss symptoms, disease burden (physical, emotion, financial, and psychological), quality of life, goals of care, and advance directive completion. Palliative care specialists may recommend interventions to manage bothersome symptoms or to improve disease burden for both participants and care partners.

Trial Locations (1)

14618

URMC Neurology; 919 Westfall Rd, Building C, Rochester

All Listed Sponsors
collaborator

American Academy of Neurology

OTHER

lead

University of Rochester

OTHER

NCT03697434 - Acceptability of Palliative Care in Parkinson Disease Care | Biotech Hunter | Biotech Hunter