405
Participants
Start Date
January 15, 2019
Primary Completion Date
August 31, 2024
Study Completion Date
August 31, 2024
Peer Community Health Worker
Participants will be communicating with their CHWs on a weekly basis, which is consistent with other successful community health worker protocols with published efficacy. Community Health Workers will be peers with sickle cell disease, who have successfully transitioned and are under 30 years of age.
Mobile Health
A mobile health application created as a resource for young adults transitioning.
Cohen's Children's Medical Center, New Hyde Park
Children's Hospital of Philadelphia, Philadelphia
St. Christophers Hospital for Children, Philadelphia
Cincinnati Children's Hospital Medical Center, Cincinnati
Connecticut Children's Medical Center, Hartford
St. Christopher's Hospital for Children
OTHER
Children's Hospital Medical Center, Cincinnati
OTHER
Steven and Alexandra Cohen Children's Medical Center
INDIV
Connecticut Children's Medical Center
OTHER
Patient-Centered Outcomes Research Institute
OTHER
Children's Hospital of Philadelphia
OTHER