NCT03568669View on ClinicalTrials.gov

Neurocognition in Congenital Central Hypoventilation Syndrome (CCHS)

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

January 31, 2016

Primary Completion Date

December 31, 2030

Study Completion Date

December 31, 2035

Conditions
Congenital Central Hypoventilation SyndromeCongenital Central HypoventilationCCHSCCHS With Hirschsprung DiseaseCCHS With Neural Crest TumorCCHS With Neuroblastoma
Interventions
OTHER

NIH Toolbox Cognition Battery

An app-based cognitive assessment of executive function, attention, memory, and language that takes approximately 45 minutes to complete on an iPad

Trial Locations (4)

19104

ENROLLING_BY_INVITATION

Children's Hospital of Philadelphia, Philadelphia

60611

RECRUITING

Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago

90027

RECRUITING

Children's Hospital Los Angeles, Los Angeles

98105

RECRUITING

Seattle Children's Hospital, Seattle

All Listed Sponsors
collaborator

Ann & Robert H Lurie Children's Hospital of Chicago

OTHER

collaborator

Seattle Children's Hospital

OTHER

collaborator

Children's Hospital Los Angeles

OTHER

collaborator

Children's Hospital of Philadelphia

OTHER

lead

Debra Weese-Mayer

OTHER