Children and Adolescents With Marfan Syndrome: 10,000 Healthy Steps and Beyond

NACompletedINTERVENTIONAL
Enrollment

24

Participants

Timeline

Start Date

January 1, 2017

Primary Completion Date

December 31, 2019

Study Completion Date

December 31, 2019

Conditions
Marfan Syndrome
Interventions
BEHAVIORAL

Exercise

Across studies in adolescents in general population, 60 minutes of recommended daily exercise level is achieved, on average, within a total volume of 10,000-11,700 steps. The investigators will assess baseline physical activity quantitatively by using an accelerometer worn on the wrist during waking hours over a 7-day period. Each participant will be given a Garmin device to place on their wrist that will track their steps. Then patients will be asked to complete 10,000 steps daily for 6 months (acclimation over a week), which will be encouraged by daily text messages or e-mail, and weekly phone calls by the intervention team in addition to a Garmin and Facebook peer group.

Trial Locations (1)

94306

Stanford Children's Health, Palo Alto

All Listed Sponsors
collaborator

Midwestern University

OTHER

lead

Stanford University

OTHER

NCT03567460 - Children and Adolescents With Marfan Syndrome: 10,000 Healthy Steps and Beyond | Biotech Hunter | Biotech Hunter