Dual Guidance Structure for Evaluation of Patients With Unclear Diagnosis in Centers for Rare Diseases

NACompletedINTERVENTIONAL
Enrollment

1,379

Participants

Timeline

Start Date

October 15, 2018

Primary Completion Date

January 31, 2022

Study Completion Date

September 30, 2022

Conditions
Rare DiseasesOrphan Diseases
Interventions
OTHER

dual expert guidance structure

Two medical experts, one somatic specialist and one psychiatrist/psychosomatic specialist see all medical records and the patients together

Trial Locations (12)

30625

Center for Rare Diseases, Hannover Medical School, Hanover

44791

Center for Rare Diseases CeSER, St. Josef Hospital, Bochum

LWL-Universitätsklinikum der Ruhr-Universität, Bochum

48149

Center for Rare Diseases, University Hospital, Münster

52074

Center for Rare Diseases ZSEA, University Hospital, Aachen

55131

Center for Rare Diseases, Medical Center, Mainz

60590

Center for Rare Diseases FRZSE, UNiversity Hospital, Frankfurt

72076

Center for Rare Diseases, University Hospital, Tübingen

89075

Center for Rare Diseases, University Hospital, Ulm

93053

Center for Rare Diseases ZSER, University Hospital, Regensburg

97080

Center for Rare Diseases ZESE, University Hospital, Würzburg

Unknown

Center for Rare Diseases MKSE, Otto von Guericke University, Magdeburg

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

Hannover Medical School

OTHER

collaborator

University Hospital, Aachen

OTHER

collaborator

Allianz Chronischer Seltener Erkrankungen ACHSE e.V.

UNKNOWN

collaborator

Goethe University

OTHER

collaborator

Universität Münster

OTHER

collaborator

St. Josef Hospital Bochum

OTHER

collaborator

Otto-von-Guericke University Magdeburg

OTHER

collaborator

University Medical Center Mainz

OTHER

collaborator

University Hospital Regensburg

OTHER

collaborator

University Hospital Tuebingen

OTHER

collaborator

University Hospital Ulm

OTHER

collaborator

IKK gesund plus

UNKNOWN

collaborator

Techniker Krankenkasse

OTHER

collaborator

University of Wuerzburg

OTHER

collaborator

Universitätsklinikum Hamburg-Eppendorf

OTHER

collaborator

AOK Hessen

INDUSTRY

collaborator

LWL-Universitätsklinikum der Ruhr-Universität Bochum

UNKNOWN

lead

Wuerzburg University Hospital

OTHER

NCT03563677 - Dual Guidance Structure for Evaluation of Patients With Unclear Diagnosis in Centers for Rare Diseases | Biotech Hunter | Biotech Hunter