580
Participants
Start Date
June 14, 2021
Primary Completion Date
December 15, 2024
Study Completion Date
December 25, 2024
SurvivorLink
SurvivorLink (www.cancersurvivorlink.org) was developed in 2010 as a HIPAA compliant web-based communication tool to enable survivors to learn about survivorship care, store their SHP and other important health documents, and share their SHP and other health documents with their various healthcare providers. Once the registrant creates their health record, they can upload and store their important health documents and electronically share their health record with their providers. Other key features include a provider directory for patients to find physicians knowledgeable of survivor care, additional patient/parent material available in English/Spanish, and additional continuing medical education (CME) modules for providers to learn about survivor care.
Upstate Medical University, Syracuse
University of Pittsburgh Medical Center (UPMC) Children's Hospital of Pittsburgh, Pittsburgh
Penn State Children's Hospital, Hershey
Children's National Medical Center, Washington D.C.
Arnold Palmer Hospital for Children, Orlando
Riley Children's Health, Indianapolis
University of Iowa Stead Family Children's Hospital, Iowa City
University of Chicago Medicine Comer Children's Hospital, Chicago
Washington University St. Louis Children's Hospital, St Louis
Phoenix Children's Hospital, Phoenix
Banner University Medical Center in Tucson, Tucson
Children's Hospital of Orange County, Orange
National Cancer Institute (NCI)
NIH
Emory University
OTHER