SurvivorLink: Scalability of an Electronic Personal Health Record

NACompletedINTERVENTIONAL
Enrollment

580

Participants

Timeline

Start Date

June 14, 2021

Primary Completion Date

December 15, 2024

Study Completion Date

December 25, 2024

Conditions
Childhood Cancer
Interventions
BEHAVIORAL

SurvivorLink

SurvivorLink (www.cancersurvivorlink.org) was developed in 2010 as a HIPAA compliant web-based communication tool to enable survivors to learn about survivorship care, store their SHP and other important health documents, and share their SHP and other health documents with their various healthcare providers. Once the registrant creates their health record, they can upload and store their important health documents and electronically share their health record with their providers. Other key features include a provider directory for patients to find physicians knowledgeable of survivor care, additional patient/parent material available in English/Spanish, and additional continuing medical education (CME) modules for providers to learn about survivor care.

Trial Locations (12)

13210

Upstate Medical University, Syracuse

15224

University of Pittsburgh Medical Center (UPMC) Children's Hospital of Pittsburgh, Pittsburgh

17033

Penn State Children's Hospital, Hershey

20010

Children's National Medical Center, Washington D.C.

32806

Arnold Palmer Hospital for Children, Orlando

46202

Riley Children's Health, Indianapolis

52242

University of Iowa Stead Family Children's Hospital, Iowa City

60637

University of Chicago Medicine Comer Children's Hospital, Chicago

63110

Washington University St. Louis Children's Hospital, St Louis

85016

Phoenix Children's Hospital, Phoenix

85719

Banner University Medical Center in Tucson, Tucson

92868

Children's Hospital of Orange County, Orange

All Listed Sponsors
collaborator

National Cancer Institute (NCI)

NIH

lead

Emory University

OTHER