NCT03519672View on ClinicalTrials.gov

Prospective Psychometric Evaluation Study of a Patient-reported Outcomes (PRO) Instrument for Congenital Thrombotic Thrombocytopenic Purpura (cTTP, Upshaw-Schulman Syndrome [USS], Hereditary Thrombotic Thrombocytopenic Purpura [hTTP]

CompletedOBSERVATIONAL
Enrollment

41

Participants

Timeline

Start Date

July 12, 2018

Primary Completion Date

April 8, 2019

Study Completion Date

April 8, 2019

Conditions
Congenital Thrombotic Thrombocytopenic Purpura
Interventions
OTHER

No intervention

This is a non-interventional study.

Trial Locations (4)

30308

AutoCruitment, Atlanta

77030

Houston Methodist Research Institute, Houston

CB2 0QQ

Cambridge University Hospital, Cambridge

WC1E 6HX

University College London Hospital, London

All Listed Sponsors
lead

Baxalta now part of Shire

INDUSTRY

NCT03519672 - Prospective Psychometric Evaluation Study of a Patient-reported Outcomes (PRO) Instrument for Congenital Thrombotic Thrombocytopenic Purpura (cTTP, Upshaw-Schulman Syndrome [USS], Hereditary Thrombotic Thrombocytopenic Purpura [hTTP] | Biotech Hunter | Biotech Hunter