The Scleroderma Patient-centered Intervention Network (SPIN) Support Group Leader Education Program Feasibility Trial

NACompletedINTERVENTIONAL
Enrollment

10

Participants

Timeline

Start Date

April 18, 2018

Primary Completion Date

August 10, 2018

Study Completion Date

August 10, 2018

Conditions
SclerodermaSystemic Sclerosis
Interventions
OTHER

SPIN-SSLED Program

The program includes 13 modules that will be delivered live via webinar over the course of the 3-month program. Each module will be delivered in a 60- to 90-minute session. Module topics include (1) the leader's role; (2) starting a support group; (3) structuring a support group meeting; (4) scleroderma 101; (5) successful support group culture; (6 \&7) managing support group dynamics I and II; (8) grief and crisis in scleroderma; (9) marketing and recruitment; (10) the continuity of the group; (11) supporting yourself as a leader; (12) virtual support group meetings, (13) support group leader resources. Participants will receive a workbook, be shown filmed vignettes, and will have access to an online resource center.

Trial Locations (1)

H3S 1Y9

Jewish General Hospital, Montreal

All Listed Sponsors
lead

Lady Davis Institute

OTHER

NCT03508661 - The Scleroderma Patient-centered Intervention Network (SPIN) Support Group Leader Education Program Feasibility Trial | Biotech Hunter | Biotech Hunter