196
Participants
Start Date
March 1, 2018
Primary Completion Date
September 14, 2022
Study Completion Date
September 14, 2022
PediQUEST Response
PediQUEST Response consists of regular feedback of electronic patient reported outcomes (child symptoms and quality of life) to providers and families coupled with involvement of the palliative care team, who will meet with families and providers within three weeks of randomization and follow-up at least monthly as deemed necessary based on PediQUEST feedback reports and other clinical indications.
Usual Cancer Care
Patients assigned to the usual cancer care arm, will receive the standard care provided by participating sites + be required to complete PediQUEST surveys (but no reports will be generated).
Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago
Texas Children's Hospital, Houston
Boston Children's Hospital, Boston
Dana Farber Cancer Institute, Boston
The Children's Hospital of Philadelphia, Philadelphia
Seattle Children's Research Institute, Seattle
Children's Hospital of Philadelphia
OTHER
Seattle Children's Hospital
OTHER
St. Jude Children's Research Hospital
OTHER
Children's Hospitals and Clinics of Minnesota
OTHER
Nationwide Children's Hospital
OTHER
University of Alabama at Birmingham
OTHER
Deakin University
OTHER
Boston Children's Hospital
OTHER
Ann & Robert H Lurie Children's Hospital of Chicago
OTHER
Baylor College of Medicine
OTHER
Dana-Farber Cancer Institute
OTHER
National Institute of Nursing Research (NINR)
NIH
Joanne Wolfe, MD, MPH
OTHER