Targeted Literature Review and Subject Interviews in Wiskott-Aldrich Syndrome (WAS)

CompletedOBSERVATIONAL
Enrollment

19

Participants

Timeline

Start Date

January 24, 2018

Primary Completion Date

September 14, 2018

Study Completion Date

September 14, 2018

Conditions
Wiskott-Aldrich Syndrome
Interventions
OTHER

Patient Interview guide

The interviewer will conduct the interview for subjects with WAS using a semi-structured patient interview guide.

OTHER

Caregiver interview guide

The interviewer will conduct the interview for caregivers of subjects with WAS using a semi-structured caregiver interview guide.

OTHER

Sociodemographic questionnaire

At the end of interview, subjects will be required to complete subject or caregiver versions of country-specific sociodemographic questionnaire.

OTHER

Pediatric quality of life (PedsQL) questionnaire

The PedsQL is a validated generic measure of health-related quality of life (HRQOL) in children, adolescents, and young adults with acute and chronic health conditions. At the end of interview, subjects will be required to complete subject or caregiver versions of PedsQL questionnaire.

OTHER

Clinical questionnaire

At the end of interview, subjects will be required to complete subject or caregiver versions of clinical questionnaire.

Trial Locations (1)

19426

GSK Investigational Site, Collegeville

Sponsors

Lead Sponsor

All Listed Sponsors
lead

GlaxoSmithKline

INDUSTRY

NCT03399461 - Targeted Literature Review and Subject Interviews in Wiskott-Aldrich Syndrome (WAS) | Biotech Hunter | Biotech Hunter