242
Participants
Start Date
May 4, 2018
Primary Completion Date
February 3, 2022
Study Completion Date
December 7, 2022
SPIRIT-in person
The SPIRIT-in person intervention adapted for dementia will include one session and will be conducted in a private room at the clinic. SPIRIT is a structured psychoeducational intervention, targeting both patient and surrogate. The SPIRIT intervention assists patients in clarifying their end-of-life preferences and helps surrogates understand the patient's wishes and prepare for the surrogate role. The intervention is expected to last 45-60 minutes.
SPIRIT-remote
The SPIRIT-remote intervention adapted for dementia will include one session and will be conducted through teleconference. SPIRIT is a structured psychoeducational intervention, targeting both patient and surrogate. The SPIRIT intervention assists patients in clarifying their end-of-life preferences and helps surrogates understand the patient's wishes and prepare for the surrogate role. The intervention is expected to last 45-60 minutes.
Usual care
Participants will receive the usual care that is provided through the clinic they receive care through. This may include completing advanced directives, referral to a support group, or referral to a social worker for further discussion about end of life issues.
Assisted Living Facilities in the Metro Atlanta Area, Atlanta
Grady Health System, Atlanta
Emory Clinic Geriatrics, Atlanta
Northwestern University, Evanston
Rush Alzheimer's Disease Center, Chicago
National Institute on Aging (NIA)
NIH
Emory University
OTHER