289
Participants
Start Date
December 29, 2017
Primary Completion Date
June 29, 2020
Study Completion Date
June 29, 2020
PEDSS - symptom management
All subjects will receive education regarding their specific disease and treatment in accordance with current practices. Cancer care providers describe detailed side effects of treatment to parents during the treatment consent process. In addition, all parents will receive standard discharge education before hospital discharge, which includes a list of home medications and information regarding whom to call for emergencies. The PEDSS - symptom management will be delivered prior to the initial hospital discharge. The nurse will review the symptom management worksheet verbally with the parent, then distribute the written worksheet to the parent.
PEDSS - support for the caregiver
All subjects will receive education regarding their specific disease and treatment in accordance with current practices. Cancer care providers describe detailed side effects of treatment to parents during the treatment consent process. In addition, all parents will receive standard discharge education before hospital discharge, which includes a list of home medications and information regarding whom to call for emergencies. The PEDSS - support for the caregiver will be delivered prior to the initial hospital discharge. The nurse will review the worksheet verbally with the parent, then distribute the written worksheet to the parent.
Cohen Children's Medical Center Northwell Health, New Hyde Park
West Virginia University Medicine, Morgantown
Duke University Medical Center, Durham
Levine Children's Hospital, Charlotte
Medical University of South Carolina Children's Hospital, Charleston
Nicklaus Children's Hospital, Miami
St. Jude Children's Research Hospital, Memphis
Nationwide Children's Hospital, Columbus
University of Wisconsin Health American Children's Hospital, Madison
Northwestern Central DuPage Hospital, Winfield
Ann and Robert H. Lurie Children's Hospital of Chicago, Chicago
St. Louis Children's Hospital, St Louis
Children's Health System of Texas Children's Medical Center, Dallas
Maine Children's Cancer Program at Maine Medical Center, Scarborough
St. Peter's University Hospital, New Brunswick
King Faisal Specialist Hospital and Research Centre-Riyadh, Riyadh
Lead Sponsor
Children's Health System of Texas Children's Medical Center
UNKNOWN
Cohen Children's Medical Center
OTHER
Levine Children's Hospital
OTHER
Lurie Children's Hospital of Chicago
UNKNOWN
Maine Children's Cancer Program at Maine Medical Center
UNKNOWN
Medical University of South Carolina Children's Hospital
UNKNOWN
Nationwide Children's Hospital
OTHER
Northwestern Medicine Central DuPage Hospital
UNKNOWN
St. Jude Children's Research Hospital
OTHER
St. Louis Children's Hospital
OTHER
St. Peter's University Hospital
UNKNOWN
University of Wisconsin Health American Children's Hospital
UNKNOWN
West Virginia Univeristy Medicine
UNKNOWN
King Faisal Specialist Hospital & Research Center
OTHER
Nicklaus Children's Hospital
UNKNOWN
Duke University
OTHER