33
Participants
Start Date
March 1, 2017
Primary Completion Date
September 1, 2018
Study Completion Date
June 24, 2019
Beardslee family centered intervention
The method entails six meetings. The time for the meeting is 1-2 hours and is usually held once per week. Meetings 1 and 2) include only the parents and focus firstly on the ill parent's history and secondly on the well parent/relative. Meeting 3) includes interviews with each child aged 6-19 years, without the parents being present, concerning the child´s understanding of the disease, potential worries and questions. During the interview the child can formulate his or her own questions for the family meeting. Meeting 4) includes the parents and focuses on the planning of the family meeting. The child's thoughts and questions serve as a guide for the upcoming family meeting. Meeting 5) is the family meeting. Meeting 6) is a follow-up with all of the family members.
Ersta Sköndal Bräcke University College, Stockholm
Ersta Sköndal University College
OTHER