NCT03088020View on ClinicalTrials.gov

International Congenital Central Hypoventilation Syndrome (CCHS) Registry and CCHS SHARE

RecruitingOBSERVATIONAL
Enrollment

1,000

Participants

Timeline

Start Date

June 24, 2013

Primary Completion Date

December 31, 2031

Study Completion Date

December 31, 2032

Conditions
Congenital Central Hypoventilation Syndrome
Trial Locations (1)

60611

RECRUITING

Ann & Robert H. Lurie Children's Hospital of Chicago and the Stanley Manne Children's Research Institute, Chicago

All Listed Sponsors
collaborator

Northwestern University Feinberg School of Medicine

OTHER

collaborator

The Chicago Community Trust

OTHER

lead

Debra Weese-Mayer

OTHER