Krabbe Disease Global Patient Registry

RecruitingOBSERVATIONAL
Enrollment

60

Participants

Timeline

Start Date

September 30, 2014

Primary Completion Date

September 30, 2026

Study Completion Date

September 30, 2026

Conditions
Krabbe Disease
Trial Locations (1)

14203

RECRUITING

State University of New York at Buffalo, Buffalo

All Listed Sponsors
collaborator

Rare Diseases Clinical Research Network

NETWORK

collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

collaborator

Lysosomal Disease Network

OTHER

collaborator

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

NIH

lead

State University of New York at Buffalo

OTHER

NCT02993796 - Krabbe Disease Global Patient Registry | Biotech Hunter | Biotech Hunter