Preventing Epilepsy Using Vigabatrin In Infants With Tuberous Sclerosis Complex

PHASE2CompletedINTERVENTIONAL
Enrollment

84

Participants

Timeline

Start Date

December 31, 2016

Primary Completion Date

April 26, 2023

Study Completion Date

May 5, 2023

Conditions
Tuberous Sclerosis Complex
Interventions
DRUG

Early Vigabatrin

Subjects randomized to vigabatrin will be treated with vigabatrin 100mg/kg/day until 24 months of age or until they show evidence of clinical seizures or electrographic seizures on video EEG. If electrographic or clinical seizures occur while on study drug, they will transition into the Open label phase of the study and continue to be followed until 36 months of age.

DRUG

Delayed Vigabatrin (Placebo)

Subjects randomized to placebo will be treated with matching placebo at 100mg/kg/day until 24 months of age or until they show evidence of clinical seizures or electrographic seizures on video EEG. If electrographic or clinical seizures occur while on study drug, they will transition into the Open label phase of the study and continue to be followed until 36 months of age.

Trial Locations (13)

19104

The Children's Hospital of Philadelphia, Philadelphia

20010

Children's National Medical Center, Washington D.C.

35233

University of Alabama at Birmingham, Birmingham

37710

Duke University, Durham

45229

Cincinnati's Children Hospital Medical Center, Cincinnati

48073

Beaumont Children's Hospital, Royal Oak

55102

Minnesota Epilepsy Group, PA, Saint Paul

63110

Washington University in St. Louis, St Louis

77054

University of Texas Health Science Center at Houston, Houston

90095

University of California, Los Angeles, Los Angeles

94304

Stanford University, Palo Alto

98105

Seattle Children's Hospital, Seattle

02215

Boston Children's Hospital, Boston

All Listed Sponsors
collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

lead

Martina Bebin

OTHER

NCT02849457 - Preventing Epilepsy Using Vigabatrin In Infants With Tuberous Sclerosis Complex | Biotech Hunter | Biotech Hunter