300
Participants
Start Date
June 30, 2016
Primary Completion Date
August 10, 2016
Study Completion Date
August 10, 2016
Web-based Survey
This study will occur online. Participants will be asked to complete multiple surveys one time. Participants may receive study reminder emails to complete surveys. Participants will be able to complete the surveys all at once or in multiple sessions. Participants will have approximately 3 months to complete the surveys after consenting.
University of South Florida, Health Informatics Institute, Tampa
Rare Diseases Clinical Research Network
NETWORK
National Institutes of Health (NIH)
NIH
University of South Florida
OTHER