333
Participants
Start Date
June 30, 2016
Primary Completion Date
November 19, 2016
Study Completion Date
November 19, 2016
Web-based survey
This study protocol consists of one anonymous survey. Each participant can complete only one survey. The survey will take approximately 25 minutes to complete. The survey is designed to identify items that best reflect the symptom severity and functional status in patients with CTS and CMT. A unique link to the survey will be included in an email invitation distributed to all adult CMT or HNPP patients self-registered in the RDCRN INC Contact Registry. Upon clicking the link, the participant will be directed to the IRB-approved online consent form. Upon providing consent, the participant will be directed to the online survey.
University of South Florida Health Informatics Institute, Tampa
National Institute of Neurological Disorders and Stroke (NINDS)
NIH
University of Rochester
OTHER
University of Iowa
OTHER
University of South Florida
OTHER