Natural History of Rett Syndrome & Related Disorders

CompletedOBSERVATIONAL
Enrollment

1,044

Participants

Timeline

Start Date

November 30, 2015

Primary Completion Date

July 31, 2021

Study Completion Date

July 31, 2021

Conditions
Rett SyndromeMECP2 Duplication dIsorderCDKL5 DisorderFOXG1 Syndrome
Trial Locations (14)

29646

Greenwood Genetic Center, Greenwood

35294

University of Alabama at Birmingham, Birmingham

37212

Vanderbilt University, Nashville

44195

Cleveland Clinic, Cleveland

45229

Cincinnati Children's Hospital Medical Center, Cincinnati

55101

Gillette Children's Specialty Healthcare, Saint Paul

60612

Rush University Medical Center, Chicago

77030

Baylor College of Medicine, Houston

92123

University of California San Diego, San Diego

94709

UCSF Oakland Benioff Children's Hospital, Oakland

80045-2571

University of Colorado Denver, Denver

02115

Children's Hospital Boston, Boston

63110-1093

Washington University School of Medicine and St. Louis Children's Hospital, St Louis

19104-4318

Children's Hospital of Philadelphia, Philadelphia

All Listed Sponsors
collaborator

National Institutes of Health (NIH)

NIH

collaborator

National Center for Advancing Translational Sciences (NCATS)

NIH

collaborator

Rare Diseases Clinical Research Network

NETWORK

collaborator

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

NIH

collaborator

National Institute of Neurological Disorders and Stroke (NINDS)

NIH

lead

University of Alabama at Birmingham

OTHER

NCT02738281 - Natural History of Rett Syndrome & Related Disorders | Biotech Hunter | Biotech Hunter