Tracking the Brain in Myotonic Dystrophies: a 5-year Longitudinal Follow-up Study

CompletedOBSERVATIONAL
Enrollment

49

Participants

Timeline

Start Date

May 31, 2007

Primary Completion Date

December 31, 2014

Study Completion Date

August 31, 2015

Conditions
Myotonic Dystrophy 1Myotonic Dystrophy 2
Interventions
OTHER

medical history

The complete medical history (including cardiovascular risk factors and medication) will be assessed at baseline and follow-up.

OTHER

neurological clinical examination

Neurological examination will be performed at baseline and follow-up.

OTHER

neuropsychological testing

Neuropsychological testing using a 13 item test battery will be performed at baseline and follow-up.

OTHER

brain MRI

Brain MRI ( 3.0 T) will be performed using the same hard- and software at baseline and follow-up.

All Listed Sponsors
collaborator

Forschungszentrum Juelich

OTHER

collaborator

Life and Brain Center Bonn

UNKNOWN

collaborator

The Marigold Foundation

UNKNOWN

lead

University Hospital, Bonn

OTHER

NCT02729597 - Tracking the Brain in Myotonic Dystrophies: a 5-year Longitudinal Follow-up Study | Biotech Hunter | Biotech Hunter