Evaluation of Outcome Metrics in Alexander Disease

RecruitingOBSERVATIONAL
Enrollment

200

Participants

Timeline

Start Date

January 26, 2016

Primary Completion Date

December 31, 2030

Study Completion Date

December 31, 2030

Conditions
Alexander Disease
Trial Locations (1)

19104

RECRUITING

Children's Hospital of Philadelphia, Philadelphia

Sponsors
All Listed Sponsors
collaborator

Ionis Pharmaceuticals, Inc.

INDUSTRY

collaborator

University of Wisconsin, Madison

OTHER

collaborator

Pennsylvania Department of Health

OTHER_GOV

lead

Children's Hospital of Philadelphia

OTHER