Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer

NACompletedINTERVENTIONAL
Enrollment

260

Participants

Timeline

Start Date

July 16, 2016

Primary Completion Date

April 30, 2021

Study Completion Date

September 29, 2022

Conditions
Cancer
Interventions
BEHAVIORAL

FAmily CEntered Advance Care Planning for Teens with Cancer

3 session weekly intervention: 1) survey completed by adolescent and family (surrogate decision maker) separately with facilitator; 2) Respecting Choices structured interview about patient's representation of illness, goals of care, hopes, treatment preferences; 3) completion of an advance directive.

Trial Locations (4)

22314

Children's National Medical Center, Washington D.C.

44308

Akron Children's Hospital, Akron

55455-2070

University of Minnesota Masonic Children's Hospital, Minneapolis

38105-3678

St. Jude Children's Research Hospital, Memphis

All Listed Sponsors
collaborator

St. Jude Children's Research Hospital

OTHER

collaborator

Akron Children's Hospital

OTHER

collaborator

National Institute of Nursing Research (NINR)

NIH

collaborator

Masonic Cancer Center, University of Minnesota

OTHER

lead

Maureen Lyon

OTHER

NCT02693665 - Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer | Biotech Hunter | Biotech Hunter