Understanding Clinical Phenotype and Collecting Biomarker Samples in C9ORF72 ALS

CompletedOBSERVATIONAL
Enrollment

128

Participants

Timeline

Start Date

February 28, 2015

Primary Completion Date

December 31, 2017

Study Completion Date

October 2, 2018

Conditions
C9ORF72 Amyotrophic Lateral Sclerosis (ALS)
Trial Locations (8)

10027

Columbia University Medical Center, New York

21287

Johns Hopkins, Baltimore

23454

Sentara Health Care / Sentara Neurology Specialists, Virginia Beach

63110

Washington University in St. Louis, St Louis

90048

Cedars Sinai Medical Center, Los Angeles

01003

University of Massachusetts, Amherst

02114

Massachusetts General Hospital, Boston

Unknown

UMC Utrecht, Utrecht

Sponsors

Collaborators (1)

All Listed Sponsors
collaborator

Cedars-Sinai Medical Center

OTHER

collaborator

UMC Utrecht

OTHER

collaborator

Johns Hopkins University

OTHER

collaborator

Massachusetts General Hospital

OTHER

collaborator

University of Massachusetts, Amherst

OTHER

collaborator

Biogen

INDUSTRY

collaborator

ALS Association

OTHER

collaborator

Columbia University

OTHER

lead

Washington University School of Medicine

OTHER

NCT02686268 - Understanding Clinical Phenotype and Collecting Biomarker Samples in C9ORF72 ALS | Biotech Hunter | Biotech Hunter