GPS (Giving Parents Support): Parent Navigation After NICU Discharge

NACompletedINTERVENTIONAL
Enrollment

300

Participants

Timeline

Start Date

January 31, 2016

Primary Completion Date

February 28, 2017

Study Completion Date

March 31, 2018

Conditions
Premature Birth of NewbornFamilyImmature NewbornNewborn MorbidityInfant Newborn Disease
Interventions
BEHAVIORAL

Parent Navigator

Parents will be contacted by the parent navigator within 2 business days after discharge to assess how the family is coping, answer questions, and provide necessary resources. Navigators will be in touch with families monthly and according to the parent's needs. They will assist the parent in making and keeping appointments, answer questions about insurance coverage, medical equipment and supplies, and serve as a liaison between parent and healthcare providers. However, the specific PN intervention for each family will be based on each family's needs and therefore may differ.

BEHAVIORAL

Care Notebook

A care notebook will be provided to all parents at discharge. The notebook was created to provide resources and serve as an organizer for appointments for parents of NICU graduates. It was based on peer to peer feedback from former NICU parents, in addition, to community resources developed by current Parent Navigator Program at Children's National Health System.

Trial Locations (1)

20010

Children's National Medical Center, Washington D.C.

All Listed Sponsors
collaborator

Patient-Centered Outcomes Research Institute

OTHER

lead

Children's National Research Institute

OTHER